FUMS 005 – Organ Donation

CORE logo


In tSusan-Stuart-preferred-picturehis episode of the FUMSnow Podcast Show, I interview Susan Stuart, President & CEO of CORE – the Center for Organ Recovery and Education.  We talk about the need for organ donation and the easy process for sign up.  I had no idea that there are 58 organ procurement centers in the U.S.  Such an interesting conversation.  And we FINALLY get the answer to the question:  can MS’ers donate organs??? […]

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To Take Drugs or Not – That Is The Question


When I was first diagnosed, the neurologist pushed a pile of information across his desk at me and told me to go home and digest it – and come back in a week with a decision as to which drug I wanted to start on immediately.  It was understood that I would be starting on a drug.  There was no discussion about alternative therapies or treatments or about the option of NOT taking anything.  I just needed to choose a drug and start immediately.  So I did.  I chose Betaserone – and I started within 2 weeks of my diagnosis.  I experienced all the side effects that they warn you about:  flu-like symptoms, uncontrollable shaking (assumedly from a spiked fever in the middle of the night), injection site irritation and general malaise.  I briefly considered going off the drugs altogether, but the doctor scared the crap out of me about permanent disability if I went off the drugs – so I just sucked it up and stayed on Betaserone.  For 5 years I shot up every other night.  I didn’t know how bad I felt or how much it had changed ME until I went completely cold-turkey off of it 2 1/2 years ago.  I wrote about that decision here.  It was a good decision then – and I’ve felt better since quitting the drugs than I have since being diagnosed.  So what’s the problem?  I had to get new insurance which meant a new doctor – which meant questions and second-guessing.  “Ok,” reasoned the new doc, “it’s gone well for you as far as we can tell, but there’s no guarantee you won’t have a major relapse – one that you can’t come back from.  Is it worth it?”  UGH. […]

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FUMS 004 – MyHealthTeams dot com Interview

Mary Ray


In this episode, I interview Mary Ray, Co-Founder and COO of MyHealthTeams.com – a wonderful resource for many health-challenged communities – and for our purposes – MS in particular – at MyMSTeam.com.  We talk about her drive to fill a void in the chronic health community – making technology work for us all.  She’s a kind, upbeat, energetic woman with personal experience in the MS realm.  I like her a lot – and I think you will too.  Have a listen! […]

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15 Seconds to a Happier Day

Girls with Clock

There I was, laying on my bed in pain and with significant “cog fog”.  Those nagging questions were hovering nearby:  will I recover from this?  will I ever be able to form full-sentences again?  am I of use to anyone?  am I of value?  do I bring anything to this world or am I just […]

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FUMS 003 – Squatty Potty Interview


http://traffic.libsyn.com/fumsnow/FUMS_003_-_Squatty_Potty_Interview.mp3Podcast: Play in new window | Download | EmbedSubscribe: iTunes | Android | RSS In this episode of the FUMSnow Podcast Show, I interview Bobby and Judy Edwards, co-founders of the very successful Squatty Potty company.  You may have seen them on the American television show “Shark Tank,” where Lori Greiner (the “warm-blooded shark”) was […]

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FUMS 002 – Kathy Bolen, MS Nurse Interview


http://traffic.libsyn.com/fumsnow/FUMS_002_-_Kathy_Bolen_MS_Nurse_Interview.mp3Podcast: Play in new window | Download | EmbedSubscribe: iTunes | Android | RSS In this episode, I interview Kathy Bolen, an RN who went the extra mile to become a certified MS nurse.  Nurses are special people – MS nurses are extra special!! You’ll learn: how someone becomes an MS nurse the difference having […]

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